Rare Disorders NZ

Rare Disorders NZ is the respected voice of rare disorders in New Zealand, and is the only national organisation supporting all New Zealanders who live with a rare condition, and the people who care for them. RDNZ offers a platform and connector hub to link people to information and rare disorder support groups specific to their disorder, and helps people navigate the health system. 

RDNZ provides a strong, unified voice to advocate for public health policy and a future healthcare system that works for those with rare disorders. 

We work with the Government, clinicians, researchers and industry to promote diagnosis, treatment, services and research. RDNZ continues to advocate for a national framework for rare disorders in New Zealand.